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DKMS Registry acts as a patient registry for transplant centers in Chile, Colombia and India, likewise, DKMS Africa supports transplant centers in South Africa. Additionally, DKMS Registry - as a donor registry - may be in direct contact with transplant centers if no established national registry exists.

DKMS is responsible for donor safety and must thus ensure that stem cell products are only provided to patients for whom an unrelated hematopoietic stem cell transplantation (HSCT) is an acceptable medical treatment.

Most DKMS donors are typed in HLA-A, -B, -C, -DRB1- DQB1 in high resolution, allowing easy identification of 10/10 matches. In case donors do not fulfill these requirements or if additional information is needed before confirmatory typing to identify the best matching donor, extended typing can be requested.

After the workup request form is received, it is checked for completeness and correctness. The following information must be provided by the transplant center at the time of a formal request for a stem cell donation.

Once the date of collection is confirmed, the DKMS case manager sends a form to the respective registry or transplant center to fill in the required information.

Donor follow-up will be initiated after the first injection of a mobilizing agent, the administration of anesthesia, or the beginning of apheresis (in case of MNC Apheresis), independently of completion of the collection. The donor’s health must be assessed to monitor the recovery process, long-term health effects after the donation and the availability for further donations.

Donor and recipient information are confidential for at least two years post-donation (1 year for US donors). The goal of maintaining donor and recipient anonymity is to ensure privacy for both, donor and recipient.

Each transplant center or registry is accountable for the payment of the fees according to DKMS Registry´s fee schedule.