Donor and recipient information are confidential for at least two years post donation (1 year for US donors). The goal of maintaining donor and recipient anonymity is to ensure privacy for both, donor and recipient. In some countries, no contact between donor and recipient is allowed. If regulations differ between donor and patient country, the stricter rule applies (e.g., if no contact between donor and patient is allowed in the donor or patient country, there will be no contact). If no laws of the donor or patient country conflict, the following applies:
Stem cell donation to an unrelated patient is an altruistic act. Many donors are interested to know if the donation was successful and the patient has recovered after stem cell donation. In addition, engraftment data have to be obtained for the Collection Centers to prove their quality and fulfill requirements for JACIE accreditation.
Two years after transplantation (for DKMS US donors 1 year), personal information of donor and recipient can be exchanged. If no laws of the donor or patient country conflict, the following applies:
Once DKMS has received the consent form from donor and recipient, the personal information can be exchanged.