Our Donor–Patient Contact teams are responsible for forwarding these letters and they ensure that the anonymity rules are adhered to. The teams offer support if a TC/HUB has any questions or complaints. Some countries allow the release of personal data between donor and patient two years after the donation. The written consent of both parties has to be obtained. Either the recipient takes the initiative and approaches their transplant center first, or DKMS provides a pre-filled form and initiates all necessary steps upon the donor’s request. Some countries also allow contact between relatives of a deceased recipient and the donor – details about where this is possible can be found below.
In the event that you are organizing a meeting between your patient/their family and the donor, please get in touch with your FU/DPC contacts at the respective DKMS entity. We would like to discuss how we can support your plans to make a first meeting of a donor and their recipient an unforgettable highlight for everyone.
Helpful documents
For the services mentioned above, we provide a donor brochure, which can be very helpful for transplant centers and registries, as well as for patients, helping them to get an overview of what happens after the donation. These brochures are also available in different languages.
Furthermore, we provide pre-filled documents for new transplant centers and registries regarding the patient inquiry contact, patient follow-up questionnaires, consent forms for the release of personal information and instructions for forwarding anonymous correspondence.
