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  • Family Typing / Donation
    • Family Typing Program
    • Family Donor Program
    • Patient-Related Typing
  • DKMS Registry Services
    • Search Support for Transplant Centers
    • Registro DKMS
    • Donor Navigator® web application
    • Hap-E Search® web application
    • EMDIS Connection to DKMS Registry
  • Donor Search Process
    • Preliminary Search Request
    • Typing Request
    • Infectious Disease Marker (IDM) Testing
    • Confirmatory Typing and Health and Availability Check (HAC) Request
  • Workup Services
    • Workup
    • Confirmatory Typing and Workup in parallel (CT + WU)
    • Subsequent Donation
    • Mononuclear Cell (MNC) Request
    • Additional Tubes
    • Courier Request
    • Further Requests for Special Cases
  • Follow-up Services
    • Donor Exclusion
    • Anonymous Contact and Release of Personal Information
  • Cell Therapy Services
    • Cell Therapy Services Team
  1. Services
  2. DKMS Services
  3. Follow-up Services
  4. Anonymous Contact and Release of Personal Information

Anonymous Contact and Release of Personal Information

Once a donation has been successfully performed, donor and patient can start sending anonymous letters. Of course, this always depends on the country-specific regulations, which can be found below.

Our Donor–Patient Contact teams are responsible for forwarding these letters and they ensure that the anonymity rules are adhered to. The teams offer support if a TC/HUB has any questions or complaints. Some countries allow the release of personal data between donor and patient two years after the donation. The written consent of both parties has to be obtained. Either the recipient takes the initiative and approaches their transplant center first, or DKMS provides a pre-filled form and initiates all necessary steps upon the donor’s request. Some countries also allow contact between relatives of a deceased recipient and the donor – details about where this is possible can be found below.

Anonymity Criteria
(257 kB)

In the event that you are organizing a meeting between your patient/their family and the donor, please get in touch with your FU/DPC contacts at the respective DKMS entity. We would like to discuss how we can support your plans to make a first meeting of a donor and their recipient an unforgettable highlight for everyone.

Helpful documents

For the services mentioned above, we provide a donor brochure, which can be very helpful for transplant centers and registries, as well as for patients, helping them to get an overview of what happens after the donation. These brochures are also available in different languages.

Donor Handbook UK
(1 MB)
Donor-Patient Contacts Brochure Germany
(15 MB)
Donor-Patient Contacts Brochure Poland
(14 MB)

Furthermore, we provide pre-filled documents for new transplant centers and registries regarding the patient inquiry contact, patient follow-up questionnaires, consent forms for the release of personal information and instructions for forwarding anonymous correspondence.

Responsible Department

Follow-Up and Donor-Patient Contact
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